Draft:CRID - Clinical Research ID

Submission declined on 13 December 2023 by KylieTastic (talk).

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Declined by KylieTastic 5 months ago. Last edited by Citation bot 2 months ago. Reviewer: Inform author.

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CRID is a web service^[1] that enables patients involved in rare disease clinical research the opportunity to create their own Unique Universal ID^[2]. The identifier consists of 8 random alphanumeric characters. To avoid confusion regarding the alphanumeric characters used in the CRID identifier, it does not use the numbers 1 or 0, or the letters I, O or L.

In the context of research studies, patients, or their parents in the case of minors, are encouraged to voluntarily disclose their CRID identifier. This is attached to their data, and will facilitate the reuse, consolidation, and sharing of research datasets among diverse studies, all while safeguarding the privacy of patients by avoiding the exposure of their Personal data.

What Problem Does CRID Address?[edit]

Patients in research studies expect their data to be collected in a coordinated manner and shared appropriately with other researchers to help advance knowledge about their disease. In practice, this rarely happens because without a unique identifier connecting the same deidentified patient across research studies, there is no mechanism for accomplishing this.

The CRID identifier enables de-identified linking of clinical research data and biospecimens across many research protocols, enabling more translational research and gain better insights into how a disease develops that's not possible in inaccessible data silos.

References[edit]

^ "The CRID - Unique Universal Clinical Research ID". thecrid.org. Retrieved 2023-12-13.
^ Nesbitt, Gerry C.; Murphy, Patricia A. (2022-01-01). "CRID - A unique, universal, patient-generated identifier to facilitate collaborative rare disease clinical research". Informatics in Medicine Unlocked. 31: 100973. doi:10.1016/j.imu.2022.100973. ISSN 2352-9148.

[1] "The CRID - Unique Universal Clinical Research ID". thecrid.org. Retrieved 2023-12-13.

[2] Nesbitt, Gerry C.; Murphy, Patricia A. (2022-01-01). "CRID - A unique, universal, patient-generated identifier to facilitate collaborative rare disease clinical research". Informatics in Medicine Unlocked. 31: 100973. doi:10.1016/j.imu.2022.100973. ISSN 2352-9148.

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